Zachary is out of surgery and it didn’t go as planned, a 5min surgery to dilate his esophagus turned into  almost a 6hr surgery and very big mess. When DR Hess tried to dilate the esophagus he perforated his stomach which is very dangerous for Zach. So DR Hess had to reopen Zachary’s poor little tummy again! When he was opened again they saw that his stomach and esophagus was twisted; not good. Dr Hess had to take down the Nissen and said that he should never have another Nissen again , well he should of listened to me in the first place!! I was trying to tell these DRS that I didn’t want him to have a re-do Nissen! The plan is to wait 3 days and see if his stomach will work again. Zach has had a lot of surgeries on his stomach and you can only have so many surgeries before things don’t work right. The DRS are also worried about his Hemoglobin being so low , him being Iron deficient and being in Kidney failure again is not helping him at all. Zachary’s little body is fighting pretty hard right now.

The bad part about Zachary not having a Nissen his that Zach will be J-tube fed the rest of his life and we are not sure if his stomach will work properly again. Time will tell.

Please keep Zachary in your prayers, We met another family up here with a little girl  that also needs a lot of prayer.      www.callisonchronicle.blogspot.com

Thank you,

Stacey

Urgent Prayers request! Zachary went in for surgery at 11am, thinking it would be a quick surgery to dilate his esophagus well it didn’t go as planned they had to re-open him again because his stomach had twisted around the esophagus and was leaking fluid which is very dangerous for him and he could get very sick. Zachary went into this surgery with high blood pressure and he is very anemic.

We need lots of prayers, I will update when I know more.

Stacey

Not much to update Zachary is just getting skinner and weaker each day, I feel so bad for him he has no energy to even walk all he wants to do is lay in bed and watch TV or sleep, he has not played a video game in 2 days! so we know he is pretty sick. The DRS are trying not to draw his labs daily because his Hemoglobin is so low and he is very Anemic.

Zachary is having another surgery on Monday, to open his esophagus and we pray that they are able to open it the first time. The DRS said it could take 2 months of dilating it once week! That blows me away. Two months with out eating or drinking thank god we have his G-J tube. Zachary is still on continuos suction, so he is not throwing up every 2-5 mins.

Zachary’s Blood Pressures are high again, so the DRS added another medication, Yes that would be 5 blood pressure meds; I think these DRS need to figure out the source and fix it.

Zachary’s bladder infection came back with two different Bactria’s that are growing so they added another med for that too.

I can say that his Kidney function is looking the best it has in a long time, He is still in Kidney failure and will need another Transplant, but his labs are stable. That is good news!!  Well, not his Hemoglobin or phorphorus.

Please pray for his surgery to go good tomorrow and a fast recovery! Please read this article about living donor kidney transplants. http://www.msnbc.msn.com/id/29641064/. There are so many people, including little babies, children, teenagers, etc. who need kidneys. If you have it in your heart to donate one of your kidneys, please read this article and call a transplant dr. or the dr. in the article. They will find someone to give your kidney to. Wade gave Zachary a kidney and it has NOT changed his health in even the smallest way. However it has changed my entire outlook on life and wanting to help others and give back. Also, please give blood!!

Thank you for your thoughts and prayers,

Stacey

Zachary had a better night but is still miserable; he doesn’t like the tube down his nose and is very thirsty. The tube that is in his nose is called an N-E tube; the esophagus to the stomach is closed so the tube sits in the esophagus to suction out the extra saliva. Zachary is very thirsty because now he is very dry from continues suction, we have to minimize what he drinks so he dosen’t aspirate and Zachary is not liking that.

Zachary has had enough and wants to go home; we are trying to entertain him as much as we can with crafts movies and of course his Wii. But being only 5 years old stuck in a little room with 4 walls would be hard on anyone.

The plan is on Monday Zachary will be going down for surgery again between 12-2pm the surgery will be only about 1 hour long if everything goes as planned. The DRS said if everything goes good we might get to go home on suction  and home nursing on Wednesday and return to the hospital the following Monday to repeat the same surgery. The surgery that they are doing is to help dilate Zachary’s esophagus by putting a balloon in his esophagus and blow it up little by little to stretch  the esophagus out enough so food and fluids will pass into the stomach. This procedure can take up to two months or longer and they can only do this procedure once a week or they can ruin his esophagus and create more problems. 

We pray that it opens up sooner than later to give Zachary a break, It is so hard to see him so miserable.

Thank you for all your prayers and support,

Stacey

Zachary on Drugs!

..

Zachary has had a busy day with DRS in and out of his room. Zach is such a rare case that now they want to write a paper about him and his Nissen surgery that went wrong!! We are not going home anytime soon; It could be awhile . The U of M DRS contacted other DRS about Zachary’s Nissen that has gone wrong. It is not normal for a child or anyone to throw up 70-100 times a day and not able to even swallow your own saliva. Zachary is tired and worn out he is down to 34lbs and is very weak.

So the plan is to put a N-G tube down his nose to the top part of the esophagus and hook him up to continues suction until Monday, than on Monday Zachary will have another surgery, The DRS will put a long tube down his esophagus with a balloon on the end and blow the balloon up to dilate the esophagus, The surgery will be done once a week for up 2 months. Yes I did say once a week for up two months or even longer depending on how long it will take. I am so pissed that I can hardly type.

The reasons why they need to hook him up to continues suction his to protect his lungs from aspiration.

Update- The DRS just put the N-g tube into Zachary’s nose, Zach did have some problems after they put the tube in with being to Drugged up. Zachary’s sat’s dropped fast and he was having trouble breathing, I have never seen DRS and nurses run so fast to suction him out and to give him O2. 

Pleas pray for Zachary so his esophagus will open and his stomach will start to work again,

Thank you for your prayers,

Stacey