12: 00 UPDATE- The NG-tube is out!!!!! Yipeeeee!!!!! There are no leaks in the stomach; but he does have reflux, because he has no more Nissen. We will deal with that part later. 

Zachary is still sleeping and now it is 9am, I know his Hemoglobin is only 7 and fear that it is even lower now. Lab will be drawing his labs at 10am for a CSA level and they are adding on  another Hemoglobin.

They also started Zachary on another Antibiotic because the culture from his Mitrofanoff came back positive with two nasty bacteria’s, which would explain his fevers that he is still having.

These DRS don’t communicate very well! They scheduled his pick line and his upper GI study at the same time!! Well he is having one done today and the other tomorrow. Not sure what one; the DRS are dukeing it out, right outside of our room. It’s kind of funny to watch DRS get mad at each other when its they’re fault.

The Nursing staff up here are wonderful! We love everyone, but some of these DRS need to find  new jobs!

The plan to get out of here!

We need prayers 

1) For his stomach to have no more leaks

2)  Gas or for him to poop

3) no more throwing up

4) for him to Tolerate his J-Tube feeds

5) Walk on his own

6) No more pain meds

7) For his Hemoglobin to come and no more INFECTIONS!!!!

for us to go home and be a family again! I am missing Kiley and Austin

We are heading down the right road!

Thank you for all you prayers,

Stacey

We all got some sleep!!! Zachary had a great night.  He fell asleep around 10pm and didn’t wake up until 3am in pain. Zach is still sleeping and it is 7:30am!!! That is great news! I think we are going to have a great day!!!

Zachary is heading down to the Operating room around 1pm today for his Pick Line. Zach’s arms are so bruised from having his labs drawn everyday sometimes twice a day for the last MONTH!! I will take a picture when he wakes up.

Zachary is also having a upper GI study today to see if he has anymore leaks in his stomach and if it will work properly again, he has been complaining about how his throat burns and he can’t swallow his throw up; yes we are worried that he will have major problems. We did talk to the DRS, and if there are problems DR Hess doesn’t want to re-do the Nissen, so we would have to find another DR that is willing to take Zachary on.

Please pray for this test to come back perfect!! So we can get Zachary out of here!!

Thank you for all your thoughts and prayers, Please keep Lynnea in your prayers.

www.callisonchronicle.blogspot.com

 Stacey

Update- Zachary will  get a Pick line put in tomorrow at 1pm.

Happy Belated St Patrick’s Day!!

And Happy Birthday to Wade!!!

Zachary had another rough night last night; He was screaming in pain from 11pm-2:3oam and the DRS up here are worthless. At 2:30 I demanded an X-ray of his stomach and chest, Zachary has another illus and his lungs are decompressed at the bottoms which is common when you have 2 big surgery to close together and not walking around. Zachary’s Hemoglobin is now 7 and his blood pressures are back up to 132/100 on 5 blood pressure meds. The positive is that he is off Oxygen and playing his Wii today, our Neighbor Karen brought up some games for him to play.

Tomorrow is a big day for Zachary; he will be going down for some very important test to determine if his N-G tube can come out and if his stomach is working properly. He is still having some pain but it is pretty under controlled with his PCA Narcotic; which he is supposes to be in the ICU in order to be on this Medication. The reason why he was having so much pain yesterday was when he started to crash the DRS had to give him Narcan it’s a drug that wipes out all pain Meds and gets his heart beating again. Well it took all day yesterday and night to finally get caught up on his pain.

I am still waiting on a plan to get out of here; but i do know we need to get his Bowel sounds back and for some gas again!! So basically back to square one.

Thank you for all your prayers, Please keep little Lynnea in your prayers.  www.callisonchronicle.blogspot.com

Stacey

Zachary has been having a lot of pain today, so they have been giving him a lot of pain meds. Around 3:30 Today Zachary’s Oxygen  levels  dropped pretty fast along with his blood pressure, his respirations were very shallow and slow. Yea I was scared; the nurse put oxygen on him and his Oxygen levels still were not coming up and they were unable to get his blood pressure up. About 5 mins later  the DRS came in and had to give him Narcan to reverse the effects of his Medications and to get his heart beating again. Zachary is stable but is now on Oxygen. They also did a chest X-ray to look for fluid in his Lungs.

We pray that we keep moving forward and no more steps back!!

Thank you for all your prayers, 

Stacey

Zachary Elsenpeter

420 Delaware Street S.E

 Minneapolis, Mn 55455

Room 216 5A

Zachary had a rough night with pain and being really itchy from the narcotics, I had to rub his poor little tummy and head all night. I feel so bad that he is starting all over from a recovery stand point. Then DRS came in and all they keep saying is your Zach is such a little fighter with all that he has been through.

Zachary will start TPN again for about another week and hopefully get him back on his J-tube feeds, depending on if his stomach will work again properly. Being on TPN is really hard on Zachary’s Transplanted Kidney and now that he is in Kidney Failure again it is even harder on him.  Zachary is still having high Blood Pressure again even with him being on 5 Blood Pressure Meds! I am trying to get Cardiologists involved to make sure his heart is handling all this stress.

The plan is in 3 days to do a die study to see if his stomach or esophagus is still leaking if not we will try to give Zachary small sips of water to see what happens. We are having a hard time keeping Zach here at the U of M and are ready to Transfer him to Mayo, the U of M has made too many mistakes. The nurese here are wonderful but the DRS need to communicate alittle better.

Thank you for all your thoughts and prayers, Please keep Lynnea in your prayers she is 4 months old  and is on a heart-Lung bybass machine   www.callisonchronicle.blogspot.com

Stacey