John Hopkins call today… They have looked over Zachary’s Medical records since rejection. They said with his PRA and Donor antibodies so high that he has no chance of finding a kidney right now. The plan is to send his blood to there hospital. They have the best antibody and Tissues typing machine in the US to do more testings to see why his levels are so high. They have never seen a child with his Donor Antibodies as high as his.

We are working on writing an Appeal letter because Zachary’s insurance will not pay for us to go there. The plan is to run some blood work and see if they will accept him into there program.

We go to Mayo in Rochester June 30…They are saying the same as John Hopkins and I am praying that they will work together so we can stay closer to home. John Hopkins still wants us to come out for a visit, we are just waiting on his insurance to approve it.

Thank you for all your thoughts and prayers.

Stacey

Nights are still very restless..With lots of screaming. Now I think he is so sleep deprived that anxiety is starting to play apart in his sleep issues. We are back down at the U of M tomorrow to talk about another plan for his sleep issue.

Yesterday I brought Zachary to famous foot wear because his shoes are to tight. I felt so bad.. I was squeezing him into a size 10 but he measured at almost a 13 ! He grew almost 3 sizes in less than 6 months ! AMAZING !! Kidney Kids are smaller and when you are in Kidney Failure you don’t grow. Well, Zachary is growing and getting bigger !!

More Good NEWS!! He is starting to eat about 300cals a day by mouth !! We are so excited ! He need to be very careful when he eats by mouth because he aspirates from above and below. He has had aspirating Pneumonia about 7 times since his Nissenfundelplaction Take down when the Drs. Perforated his stomach Feb 2009. He is making AWESOME progress !!

Overall, He is doing great. I am still waiting on a call back from the Drs. about his Mitrofanoff site where his Abscess is. It’s looking better but seems to be getting deeper into the track.

Thank you for all your thoughts and Prayers ,
Please consider to get tested to save these AMAZING people in HONOR of Zachary my HERO!! They all have very high Antibodies like Zachary and need a HERO to get them of of a machine called Dialysis that is keeping them alive ! You could save there life or someone else living day to day waiting for that 1 phone call that could save there life !

DONATE LIFE !

Otto Father of 3 living on Dialysis

http://www.facebook.com/pages/Help-find-Ottos-HERO/111480325536939?ref=ts

Kidney for Melissa Mother 2 of living on Dialysis

http://www.facebook.com/pages/Find-a-Kidney-for-Melissa-Larson/332821026895

Patrick 15 yr old living on Dialysis
www.kidneyforpatrick.com

Thank you for all your thoughts and prayers !!

Zach had his Drs today w/ his Kidney Dr.. All Testing to see if you can donate a kidney to Zachary is on hold. That is why nobody is getting test kits or call backs. Zachary’s antibodies are to high for a donor. They are not sending out anymore test kits until they come down to a safe level.

The Kidney Dr is also very happy with how his kidney recovered from his infection last week. All of his levels are back to where they were before the infection. Zachary is stable and his Kidney function is holding it’s own. We pray that his Kidney heals and his function doesn’t deteriorate until his Antibodies levels come down to give Zachary more time with this kidney.

The Dr. did mention 3 different times on how thankful there are for all the promoting about Organ Donation and the need for kidneys. There have been many people that were saved because of Zachary’s story.
If you were not a match for Zachary please consider to save another life.

Otto
Father of 3 living on Dialysis
http://www.facebook.com/pages/Help-find-Ottos-HERO/111480325536939?ref=ts

Kidney for Melissa
Mother 2 of living on Dialysis
http://www.kidney4mel.com/

Patrick 15 yr old living on Dialysis

www.kidneyforpatrick.com

In Honor of Zachary please consider to save Life !!! You could be the one to change someone’s life for ever! DONATE LIFE !

Thank you for all your thoughts and prayers,
Stacey

We are HOME !!!! We got home on Friday afternoon.

Zachary was so excited when we got home!! He played out side all afternoon into the evening. He is feeling great ! The one thing that worries me is he is up 6lbs full of fluid and his legs are looking like tree trunks. He is very swollen. I am thinking that he needs the IV lasix. I just gave him another dose of oral Lasix, so hopefully we can get rid of some fluid.

This picture is Zachary standing in front of his room. This hospital stay he got to stay in 1 of the “Adopt a Rooms”.

Thank you for all your prayers.. It is so nice to be home as a family again. This was 1 of our shortest stays, but when your in, it feels like forever.

Please pray for Zachary to Pee and for his body to get rid of the extra fluid so he is not so swollen.

WCCO Did another story on Zachary last night.

#2 Story

http://wcco.com/local/zachary.kidney.failure.2.1706526.html

Please watch his NEW Video … DONATE LIFE !!

http://www.onetruemedia.com/shared?p=ac8b7c0822def93bf101df&skin_id=601

Please keep passing along his website and facebook !! We need to find Zachary a HERO ! I am getting very worried… Over 500 have called in and we still have no match !! He could take another 500 people to find Zachary the perfect kIDNEY.. We just have to find that right person.. DONATE LIFE !!

If you are interested in getting tested to donate a kidney to Zach: If you are A+ A- O+ O- call (612) 672-7270 (Local #)
1-800-328-5465 Have them send you a kit. Take this kit to your local clinic where they will draw your blood. There is no cost!

We are also walking in the National Kidney Walk this year.. If you would like to walk or donate in Honor of Zachary please click below.

http://donate.kidney.org/site/TR/Walk/MinnesotatheDakotasampIowa?px=1100384&pg=personal&fr_id=2710

Zachary’s WCCO story #1 story….http://wcco.com/health/kidney.donor.search.2.1554998.html

Please check out Zachary’s facebook

http://www.facebook.com/pages/Save-Zachary-Elsenpeter/275300678444

Thank you, for all your thoughts and prayers,

All night after Zach Got Lasix IV again, I kept getting up and checking to see if there was pee in Zach’s Catheter bag. NONE! This morning I wanted to cry…I asked the nurse if I could re-cath him to see if there was a clog. I re-cathed him and 475cc of liquid gold was flowing so beautifully into the bag! I I cried. Zachary got very excited! I think we all did.

Zachary had a better night , but was still very restless like always. They just drew his labs again ,so now it’s the waiting game. If his labs are stable we might get to go home today or tomorrow. But, next Tuesday we are back down here with his Primary Kidney Dr to come up with a plan for Zach. None of the Drs. that are on service wants to make any changes or plans for him. They are leaving it up to his Primary.

His cough is still pretty bad and his tummy is very swollen. They did do another X-ray last night that suggested fluid overload. Well, We already new that. I think they just wanted to expose the kid to more radiation.

Next Monday we are also coming back down here for a G-J Tube change. They use a special BIG x-ray machine in “INR” Intervention Radiology. Zachary gets his tube changed out every 3 months. I think this time around we are going on 6 months. Oops .

Thank you all for your thoughts and prayers. Thank you all that have called in to Save Zachary. Thank you all for being so supportive with our Transplant Journey.

Stacey

WCCO Did another story on Zachary last night.

#2 Story

http://wcco.com/local/zachary.kidney.failure.2.1706526.html

Please watch his NEW Video … DONATE LIFE !!

http://www.onetruemedia.com/shared?p=ac8b7c0822def93bf101df&skin_id=601

Please keep passing along his website and facebook !! We need to find Zachary a HERO ! I am getting very worried… Over 500 have called in and we still have no match !! He could take another 500 people to find Zachary the perfect kIDNEY.. We just have to find that right person.. DONATE LIFE !!

If you are interested in getting tested to donate a kidney to Zach: If you are A+ A- O+ O- call (612) 672-7270 (Local #)
1-800-328-5465 Have them send you a kit. Take this kit to your local clinic where they will draw your blood. There is no cost!

We are also walking in the National Kidney Walk this year.. If you would like to walk or donate in Honor of Zachary please click below.

http://donate.kidney.org/site/TR/Walk/MinnesotatheDakotasampIowa?px=1100384&pg=personal&fr_id=2710

Zachary’s WCCO story #1 story….http://wcco.com/health/kidney.donor.search.2.1554998.html

Please check out Zachary’s facebook

http://www.facebook.com/pages/Save-Zachary-Elsenpeter/275300678444

Thank you, for all your thoughts and prayers,