2nd Update…. We are home!!!!!!!!!!!!!!!!! Why i am not sure.. He puked all the way home… so plan is to hopefully make it through the night, and bring him back for a new J-tube.

Update… J-tube is in the intestines, no one can explain why he is throwing up milk. But that is Zachary for you..
now they are running a UA to check his urine. If this is negative, then we might get to go home.

We are sitting here in the ER. Not fun , but this is life.
Labs creatinine still 2.4 way to high
White count 15.2 very high
Lymphocytes 4 very low
Neutrophils 94 very high
Infection mostly…

X-ray of chest… Streaky and spotty with junk
X-ray of Stomach…. Not a good one, so we are heading down for another.. I think Zachary is going to start to glow with all of the radiation that he has been expose to.

The reason why we came in for the first place was Zachary has been throwing up Milk.. He is on J-tube feeds. Nothing goes into the stomach.. Most likely his j-tube has migrated into the stomach.

The Plan …. Still waiting… another X-ray and than we are heading up to 5A. Zachary most likely needs a new J-tube. He will need to be hooked up to IV fluids to hydrate him until they can get him in for surgery on Monday.

i will update later when I will update later when I know more.

Thank you,
Stacey Elsenpeter

Zachary had his labs drawn today and his creatinine is still 2.4… Still way to high! His Hemoglobin is also low and his White count is 13! The DRS don’t like his labs but are letting us still home for the weekend. They are re-drawing him again on Monday.
Today they also drew his Anti-body level. Hopefully by Tuesday next week I’ll have the results. I pray that his Anti-bodies have not gone up and have come down. This lab is going to

Zachary and Santa at the MOA yesterday

Overall Zachary looks great, his energy level goes up and down. He is happy and smiling and still has his silly moments. We have had long talks about how his Kidney is sick and that he needs a new one to feel better. All i keep telling him is soon… soon he will feel better and be able to run and go back to school like he did before. Talking about school.. Zachary is being home schooled M-F for an hour to get caught up with his class mates. He missed a whole month of school. He is loving that a teacher comes to our house and he gets to do school at home.
Thank you Cindy … Cindy is Zachary’s home school teacher.

Please also pray for,

http://www.caringbridge.org/visit/lukeburton

http://www.caringbridge.org/visit/daltonserich

http://www.caringbridge.org/mn/dawsonrude

http://www.caringbridge.org/visit/patricks/mystory

ALL of these KIDS have had a kidney Transplant and are in rejection, or needs a new Kidney. They all need our prayers….
Patrick is in Desperate Need for a new kidney NOW… If you would like to be his HERO please check out his Website..

Thank you for all your thoughts and prayers,
Stacey

Zachary had his labs drawn yesterday and his creatinine was 2.4!!! I just talked to the DRS and we now have a new plan. Zachary’s Anti-bodies are now at 91% not 100% like they were in October.. so he has a 9% chance of finding that match. They are going to redraw them on Friday and if there is still a window we are going to start to test people hopefully next week…

If you would like to be his HERO and give him the most AMAZING gift to give him a second chance at life.. and knowing that you are saving a little 5 yr old boy.. Would mean more than words could say to Zachary and to our Family.

IT COULD BE YOU !!! I as his mom wish I was a match but my blood type is B+ Zachary is A+ The DRS would like a 6 out of 6 match so we need to find that special person.. He or She is out there … We just need them to find it in there heart and see if they could be Zachary’s HERO!!!

Please consider being my HERO

Please also pray for,

http://www.caringbridge.org/visit/lukeburton

http://www.caringbridge.org/visit/daltonserich

http://www.caringbridge.org/mn/dawsonrude

http://www.caringbridge.org/visit/patricks/mystory

ALL of these KIDS have had a kidney Transplant and are in rejection, or needs a new Kidney. They all need our prayers….
Patrick is in Desperate Need for a new kidney NOW… If you would like to be his HERO please check out his Website..

Thank you all for all your thoughts and prayers,

Stacey

UPDATE.. Zachary’s creatinine is back up to 2.4! Not liking one bit!! now it is the waiting game for the DRS to call back. Zachary has been sleeping all morning and is still sleeping. Yesterday he had so much energy, I thought things were turing around..

Earlier post…
Zachary is doing AWESOME!! Yesterday he went ALL day without a nap!!!! He was tired but kept him self going and going ALL day!! We spent the day at my Dads new house. He lives on 12 Acres and there is a lot to do and lot to see. Thank you Dad for a fun day…..

Today Zachary has labs again… Labs are stressful, because then I have to wait and wait for the results. His Blood Pressures are finally great and he looks Awesome today!! Hopefully his labs will come back Awesome to.

I will update later when I

One of my Dads new toy!!!

Please also pray for

http://www.caringbridge.org/visit/lukeburton

http://www.caringbridge.org/visit/daltonserich

http://www.caringbridge.org/mn/dawsonrude

http://www.caringbridge.org/visit/patricks/mystory

ALL of these KIDS have had a kidney Transplant and are in rejection, or needs a new Kidney. They all need our prayers….
Patrick is in Desperate Need for a new kidney NOW… If you would like to be his HERO please check out his Website..

Stacey

We had a very nice weekend, Zachary slept pretty much the whole time. But we were able to get him out a few times.
Zachary’s Blood Pressures are very low now 90/50!! Not sure why, His heart rate has been going up and down, between 60-120. I am not liking the 120!! I do get a little scared with him being home just because I never no what is going on inside his little body.

Zachary had his Labs drawn again this morning, and they are not looking any better..:( His creatinine Kidney function is heading the wrong direction his Hemoglobin is also low. Zachary was suppose to have a biopsy this week, but now the DRS don’t feel that it is necessary and are also trying to taper him down on his Anti-rejection meds. Zachary is on MEGA doses and the DRS feel that being on high doses are not good for the rest of his body and the kidney is not responding, so it makes no sense on being on them when we are losing the Kidney. I am very sad But right now I just want to get to a safe place with Zach and try to get him that new Kidney as soon as possible.

Sorry for all my rambling.. It is just so hard watching him go through this.. I just can’t wait for Zach to be back.. All he does lately is sleep and sleep

The plan is to draw labs again on Wednesday and Friday.. and thats are life.. right now it is a waiting game, we are just waiting to see what Zachary’s body is going to do. We just go day by day not knowing what tomorrow is going to bring.

Thank you for all your thoughts and prayers,
Stacey