UPDATE ON DR. APPONITMENT TODAY..

I am crying here as I am typing.. The 2 potential matches for Zachary were not a match. Zachary’s stubborn antibodies rejection them on round 2 testing. I am so scared for Zachary, 100s of people have been tested and no match has been found. The other bad news is Zachary will be having another big surgery next week to repair his Mitrofanoff and his lower unit. I will update later when I know more.

Wow , almost 3,000 fans on “Save Zachary” How Amazing !! This week we should hear something about the 2 potential matches. The waiting is so hard…. Zachary creatinine “Kidney function” took a big jump last week. They are re-drawing him this week. I pray that his labs last week was a false read.

Tomorrow we are down at the U of M all day for Drs. appointments for Austin and Zachary. Austin has been having bladder issues for about 2 months. The Drs. are worried , and want to make sure that he has no kidney issues. Austin is having an ultrasound of his kidneys and x-rays. Zachary is also seeing his urologist tomorrow. We are talking about when he will have his next surgery to repair his mitrofanoff and his lower unit. This will be another big surgery…Zachary’s body is to weak and sick for another big surgery. They will have to open his little body up from top to bottom again. I quit counting 2 yrs. ago … I have no idea how many times my child has been put under or opened up.  But I do know that Zachary has taught us so much… I learned to live life and love my children like today might be the last, and you never know what tomorrow will bring.

Austin is still covered in hives… he is miserable .. I am trying to get him in to see a dermatologist. I don’t think it is viral because no one has gotten anything in our house not even Zachary. We are not sure what is causing Austin’s hives, but I pray that we figure out soon. It’s hard has a parent to watch your child miserable.

I just want to thank everybody for all your thoughts and prayers.. Thank you, to all of the HEROS that have gotten tested to see if  they  can save our little boy.

I also want to thank my wonderful husband who works so many hour to keep us a float.. He is the hardest working man and best father any one could ever ask for. We love you Wade

Zachary during his Home School

Please pass his FaceBook page

http://www.facebook.com/pages/Save-Zachary-Elsenpeter/275300678444

Zachary had his first Kidney Transplant when he was just 11 months old, Which his Daddy gave him that second chance at life…. Than our lives changed again….Zachary went into Antibody , Acute and Chronic rejection September 30, 2009, He developed very high class 2 Antibodies . Zachary’s kidney is to damaged to repair, and with his high Antibodies it is going to be very difficult to find him a new Kidney. If you would like to be Zachary’s HERO and get tested to see if you are a match…PLEASE CALL… (612) 625-2186 This is the donor line. Zachary is A+ If you are A+ A- O+ O- and are in good health, under age 60 with good Blood pressures and no Diabetes you could be Zachary’s HERO!!!! Let them Know it is for Zachary Elsenpeter …

Thank you for all your thoughts and prayers,

Stacey

Zachary last summer

It has been very crazy the last couple of days… Austin broke out in hives on Saturday, which looked like Chicken pox’s . I brought him to the clinic on Monday, Tuesday, and Thursday. By Friday morning when he woke up his face and head were so swollen he could hardly open his eyes. So off to the ER on Friday morning. They drew lots of labs and checked a urine. The out come is just a nasty viral that is causes these awful hives with mild ango-edema. That means swelling of the head and face. They put him on prednisone, benadryl ,Hydroxyzine, Tylenol and Zyrtec . So now we pray that Zachary doesn’t get this.

Zachary had his labs drawn and his labs are AWFUL

My Austin covered in hives

Austin waiting in the ER

Now I am waiting to see what the plan is for him. I fear that they might admit him. His Creatinine , BUN and some of the other of labs are higher then normal. I pray that he is not going into rejection again.  I just pray that we find a match soon before he loses any more function.

There are over 2,700 fans on Zachary’s (Save Zachary) facebook and lots have called in to get tested. Thank you… You are all HERO’S.

Please pass his FaceBook page

http://www.facebook.com/pages/Save-Zachary-Elsenpeter/275300678444

Zachary had his first Kidney Transplant when he was just 11 months old, Which his Daddy gave him that second chance at life…. Than our lives changed again….Zachary went into Antibody , Acute and Chronic rejection September 30, 2009, He developed very high class 2 Antibodies . Zachary’s kidney is to damaged to repair, and with his high Antibodies it is going to be very difficult to find him a new Kidney. If you would like to be Zachary’s HERO and get tested to see if you are a match…PLEASE CALL… (612) 625-2186 This is the donor line. Zachary is A+ If you are A+ A- O+ O- and are in good health, under age 60 with good Blood pressures and no Diabetes you could be Zachary’s HERO!!!! Let them Know it is for Zachary Elsenpeter …

Stacey

UPDATE..

The Drs. are thinking Austin might have the chicken Pox’s please pray that if he does, Zachary does NOT get them.. I talked to the Transplant team and any sign of Zachary getting them he will be in the hospital on heavy duty IV meds. Check out Zachary and his new Quilt from” Quilts of Love” He loves it !

Zachary and his new quilt

We had a beach party ….

Playing with sand in the house ( What a mess )

The kids had fun playing with moon sand in the house.. It was a BIG mess but worth it. This winter has been long and COLD !!  We are all going NUTS …

I am Home from Chicago… Home sweet HOME !  Kiley did Awesome in her Gymnastic meet ! There were 4,100 gymnast competing from Thursday to Sunday… This was the BIGGEST meet that I have ever seen.

Kiley did AWESOME ! She placed 2nd on floor ,tied for 2nd on beam , 4th on vault, 9th on bars and took 4th on the all around out of her age group. She had so much fun !

This was my 1st time in 6 yrs. that I have been away from Zachary.. It was very hard.. Wade stayed home with the boys .. Wade was pretty busy doing medications ,  filling the feeding pump,  changing ferrel bags , dumping urine and just tryning to keep his head on a straight… He did a great job ! I think he has a better understanding now when he coms home from work and I am all stressed out.

Zachary is doing pretty good his labs are stable and blood pressure are back down again… He has not had a bowel movement in a week so his tummy was pretty BIG ! I gave him a fleet enema today and he had great results.. I think he lost about 5 pounds !

Austin is sick and covered in heivs…. Yesterday as soon as I got home from the Air port I put Austin in the car and drove him to the clinic. The Dr thinks it’s something viral but not sure…When he woke up today  his face was pretty swollen and his body is covered in welts. I feel so bad for him..

Overall we are all good and now it’s the waiting game again to see if maybe one of the potential matches Zachary  and he will have a HERO. One was drawn on last Wednesday and one was drawn on Monday. Hopefully in about 2 weeks we will know the results.

Thank you for your thoughts and prayers,

Stacey

Kiley and her awards

There are over 2,500 fans on Zachary’s (Save Zachary) facebook and lots have called in to get tested. Thank you… You are all HERO’S.

Please pass his FaceBook page

http://www.facebook.com/pages/Save-Zachary-Elsenpeter/275300678444

Zachary had his first Kidney Transplant when he was just 11 months old, Which his Daddy gave him that second chance at life…. Than our lives changed again….Zachary went into Antibody , Acute and Chronic rejection September 30, 2009, He developed very high class 2 Antibodies . Zachary’s kidney is to damaged to repair, and with his high Antibodies it is going to be very difficult to find him a new Kidney. If you would like to be Zachary’s HERO and get tested to see if you are a match…PLEASE CALL… (612) 625-2186 This is the donor line. Zachary is A+ If you are A+ A- O+ O- and are in good health, under age 60 with good Blood pressures and no Diabetes you could be Zachary’s HERO!!!! Let them Know it is for Zachary Elsenpeter …

The last couple of days Zachary has been feeling pretty sick … His ferral bag that drains his stomach has been a nasty and green.. NOT good. That means that he is backed up again and the stuff from his intestines are coming back up into the stomach.

The good .. Is that his blood pressures are coming back down 125/85 !! That is very good for him.  Zachary also had his labs drawn and his creatinine also has come down a little . Which is awesome !! I still BELIEVE in the power of pray.

Zachary also has 2 potential matches !!! Yippeeee!! Now it is round 2 !!  They will drawn the 2 potentials and Zachary and send it to Chicago . It takes 2 weeks from the time they recieve there blood. I am trying not to get to excited because this has happened in the past and Zachary

Thank you HopeKids

rejected their blood after round 2.

I am going to be POSITIVE and keep my hopes up… Please keep Zachary in your prayers.

Thank you,

Stacey

Zachary had an awesome day.. He had lots of energy, Played the Wii and was very excited about school today  I wish everyday was like today. I  got to watch my little Zachary full of energy , Laughing and jumping !!… He even ran up and down the Stairs playing games. I have not seen this side of Zachary in about 5 months.. I am not sure why he had  such a great day, But I pray that he has more and more like today.

Zachary is still having rough nights .. Up and down all nigh long… His blood pressures are still high with some low but consistently pretty high 140/90..

On Wednesday , Zachary will have his labs drawn .. We pray that they are stable and that he can hold his own until we find him another Kidney.. So far hundreds have called in and there is no match

There are over 2,000 fans on Zachary’s (Save Zachary) facebook and lots have called in to get tested. Thank you… You are all HERO’S.

Please pass his FaceBook page

http://www.facebook.com/pages/Save-Zachary-Elsenpeter/275300678444

Zachary had his first Kidney Transplant when he was just 11 months old, Which his Daddy gave him that second chance at life…. Than our lives changed again….Zachary went into Antibody , Acute and Chronic rejection September 30, 2009, He developed very high class 2 Antibodies . Zachary’s kidney is to damaged to repair, and with his high Antibodies it is going to be very difficult to find him a new Kidney. If you would like to be Zachary’s HERO and get tested to see if you are a match…PLEASE CALL… (612) 625-2186 This is the donor line. Zachary is A+ If you are A+ A- O+ O- and are in good health, under age 60 with good Blood pressures and no Diabetes you could be Zachary’s HERO!!!! Let them Know it is for Zachary Elsenpeter …

Zachary playing his Wii

When you leave a message please be PATIENCE. They will call you back

Thank you,

Stacey