After another long day at Mayo Hospital…
We did not get the answers that we wanted to here.. Zachary is very complicated and has a lot of different issues..”Yes we know”.
They do not have any magic treatment to help get his antibodies down. The type of rejection Zachary went into was the worst rejection you could have.. “Which is not good”.
The Neg.
-They have never delt with a child like Zachary with how high his antibodies are..
-They only do 5-10 Peds Kidney Transplants a yr.
-If he would go into rejection again, they will just let the kidney go.
-His biopsy of the kIDNEY is full of restricted vessels and lots of scare tissue.
-They would do no more Plasmapheresis or IVIG
-They would do nothing different than what the U OF M is doing..
-The Drive is long.. “Which I would drive across the world if I need to” !
Positive.
It’s beautiful !!
-Zachary would most likely not be a number, and they are more proactive on there care.
-Zachary’s GFR is 32%-35% !! Which is AWESOME !! That means that he still has a little Kidney function ! It gives us more time for his antibodies to hopefully come down and to find a Match. They usually Transplant at 20%-25%.
-They told us that 3 people that were tested for Zachary are very close matches !! If is Antibodies come down..”Even a little” ! PRAY ! PRAY ! PRAY!
We are not sure if they are willing to take him on with all of his care. We still need to do a” GI, Urology, Pulmonology, work up with the other Doctor’s.
Right now all we can do pray for his antibodies to come down, so we can successfully Transplant.
We are still not sure what we are going to do.. Wade and I have some big decisions to make about Zachary’s care over the next couple of weeks.
They will not guarantee anything..They did say that when and if he has another Kidney Transplant to prepare are selfs for a long roady Road.
Thank you for all your thoughts and prayers.. This is going to be a long road for our Zach-Man !! He has proven these Drs. wrong before.. He is a fighter and he will prove them wrong again !
You can find Zachary on face book
‘Save Zachary Elsenpeter”
http://www.facebook.com/pages/Save-Zachary-Elsenpeter/275300678444?ref=ts

