Yesterday Zachary had a Doctors appointment with the Pulmonologist “Lung DR”. I felt bad for the other patients that were waiting after us. Two hours later with looking at old X-rays and Old Medical charts all the Dr could say was he is very complicated and has been through a lot. Zachary now has Chronic Lung damage from Aspirating and NO will do another Nissenfundleplacation to fix him. Zachary has had Two Nissens and his last one didn’t go as planned and they perforated his stomach and had to do a Nissen take down. So now Zachary has been Aspirating fluid and food into his Lungs. He has had a chronic cough since April of 2009 when he had the Nissen take down. Zachary Laranoux the back of throat is swollen and he has a hard time swallowing. This is the damage from him having chronic severe reflux.
The Plan is to admit him for some more test and try to figure out another plan. When he going to be admitted we are not sure.
Now with the Kidney… Zachary’s Kidney is not a good Kidney he is now on 39 medications daily. He has very bad and little blood flow to the Kidney. The Kidney DRS said he had the WORST rejection that you could have with a Transplanted Kidney so it is going to be VERY VERY hard to find a match. They are coming up with a special plan for him for this next transplant. Next week we should get back all of his Anti-body results and get the ball rolling to start testing. They are also going to list him on the National Deceased donor list for a cadaver Kidney. I never imaged in a Million years that we would ever be sitting in this position. The Drs. said that it could take 100,s of people being tested to find a match for Zachary. We are very terrified and scared for him, we are also very hopefully.. There are so many wonderful people out there that have already come forward letting us know that they want to get tested. We are also most likely going public with TV and News paper Articles because he is going to be so hard to find that match.
Next week we will have more answers and numbers for people to call to get tested. They also told us that Wades immediate side of the family would most likely not be suitable because Zachary has built anti-bodies to Wades Kidney and anybody related to Wade would most likely not be suitable. They will still test but they told us not to get our hopes up.
We are so scared and now we are going to be one of those 100,000 families waiting for that one call that could save Zachary’s life. I fear that we could be one of the 17 families that did not get the call. Please get the word out about Zachary and let people know that there are 100,000 people waiting for that same call.
Oh, I almost forgot… Today when Zachary had his labs drawn he was very shaky his heart was racing and he was dizzy. When I called for results the nurse told me that his Glucose was 46! very critical. How interesting, he is on 24 hr J-tube feeds and this has been going on for about a month… No one ever thought about checking his Glucose level.
Well today at his appointment they sent us home with a Glucose Machine so we need to check him throughout the day and when he is having a fast heart and is dizzy.
Thank you for all your thoughts and prayers, This is going to be a long road but I know we are going to get through this.. We always do….Zachary is one MIRACLE and he is still smiling through all of this.
Thank you,
Stacey

