Wow! I can’t believe that October is over and November is in Just 2 days!! We came in September 30. And pretty much missed October. It has gone by very fast, The Nurses up here are Awesome.. They are becoming family to us. This year Zachary has spent more time here then at home between DR visits and Lots of Hospital stays.

Zachary had a AWESOME day… He is feeling great!! He was on TV today for Thursday BINGO.. And all day that is all he has been talking about. They Video taped it so I will try to post it tomorrow.

Zachary’s Blood pressures are still very high… They added another medication last night, so now we are up to 35 medications a day!! They did lower his Neroal CSA to .60 from .65 hoping that his BP’S would come down. Well, they didn’t and now his creatinine Kidney function is going up. It is so hard to manage all these meds, and to

Zachary on TV...

Zachary also started to have trimmers today. His little hands and legs will start to shake. The DRS have no clue why but are still running some test. I think Med interaction.. With him being on 35 meds, I would shake.

Tomorrow they are having a Halloween party up here at the hospital. Zachary is very excited and is going to be Black SpiderMan.

Thank you for all your thoughts and Prayers,
Stacey