It is very hard to balance all 34 of his Medications to regulate his body. They upped all his Immuno suppressions to suppress his body so it will not fight off the Kidney again. Well, doing that will cause his blood pressure to jump” Not good” and his creatinine kidney function levels go down “Which is AWESOME”. They also cut his Lasix in half, so know he is filling up with fluid again. Last night I had to cut his ID band off because he was so swollen.
We just go day to day not knowing what is going to happen tomorrow, I thought we might get to go home for the weekend for halloween for a few days. But now that doesn’t look like that is going to happen.
Zachary’ reflux is so severe that he is throwing up and dry hiving all the time. He is also having a hard to time swallowing. No one will touch him.. He needs another Nissenfundleplaction. When Ever GI come by this just say that he is to complicated and it is to risky to redo his Nissen when he is going to need a new Kidney soon.
I understand, but he is miserable. I sit here and watch him throw up and dry heiv half the day and at night.
Overall I think we are heading down the right direction. We just have some bumps in the road that we need to smooth over.
Thank you for all your thoughts and prayers,
Kiley is also still sick and is missing school again.
Please also pray for Luke and Dalton they are also fighting rejection
http://www.caringbridge.org/visit/lukeburton
http://www.caringbridge.org/visit/daltonserich
Stacey



