Hello to all Zachary’s fan’s, sorry I haven’t updated in a while we have been really busy with lots of DRS and school and just trying to being a normal family.

Zachary is doing great! He is getting bigger and stronger each day’ his weight is now up to 37lb!!!!! YIPEEE!! But we are having problems with high blood pressures 140/90! on 4 BP meds. I am waiting for a call back from the DRS to see what the next step is. The other problem is Zachary is Coughing and started to throw up at night because he has no more Nissen and We are worried that he is Aspirating into his lungs again. If this is the case then we need to do the surgery sooner than later to fix his esophagus. I talked to the DRS yesterday to order a hospital bed for him so he is more up right at night to help keep the acid down in his stomach and hopefully help him be more comfortable at night.

Zachary had a BIG day yesterday! He had Kindergarten round up!! We are planning on sending Zachary to a normal school just like Kiley. We are very scared but we want him to live a normal life just like everybody else. We have great Teachers working with him and there will be to RN on sites to Cath him, give Meds and to help him with his feeding pump. I personally don’t feel that Zachary is ready but I need to let him go. The school is right up the road so if they need me I can be there in a flash!. Zachary is very Excited and had smiles the whole time. He jumped right in with the other kids and you would never guess what he has been through.

Thank you for all your thoughts and prayers,

Stacey