Check me out!!!
Zachary is still doing great! Last night he was running a low grade fever so I was a little worried. But today he is fever FREE!!!! Yesterday Zachary had a DRS appointment with his primary and boy was she shocked! On what happened to Zachary in the last 7 weeks, after an hour long appointment we came home and Zachary and
Austin played outside for hours. It it so nice to be home…..
Zachary is still tolerating his feeds; he is up to 68cc an hour for 24 hr feeds. His Mitroffanof has come out 3 times now! and I have the hardest time getting it back in and every time I do it always bleeds. Zachary also has blisters on his tummy from the Tegadram tape so his tummy is pretty sore.
Tomorrow Jo Zach’s home nurse is coming out to draw labs and hopefully we can have her pull out Zach’s Pick Line! I don’t like it in and I am terrified that it will get infected. Every time that Zach has had one it always gets infected and then we are back in the hospital with IV antibiotics.
Thank you all for your thoughts, prayers and for your generous donations. This has been a really hard time with Zachary being in the Hospital for the last 6 weeks. We are just so happy that we are home as a family again.
This is Zachary’s Journey… Please watch…
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Thank you,
Stacey
