Zachary has had a pretty good dayJ The DRS took out the tube for the Mitroffanof which was a little scary for him. Then 2 hours later we tried to Cath him through the site and it decided to close on us! So they had to call the surgeons back and figure out a plan. Well another 2 hours later they were back with some lidocane so they could push the tube through the hole and stitch it back in. Nothing goes easy for Zachary. When the DRS finally got the tube back in they decided that it was just getting caught on a little lip (Extra piece of skin) Thank God; I thought he was going to need another surgery! Now the plan is to Cath him every 2 hours through the belly botton; Which Zachary does not like! We need 4 people to hold him down.
The plan is to keep Zachary on TPN until these DRS can figure out why his stomach and bowels are not working. Tomorrow we have a Care Conference with all the DRS that are working with Zachary. I think I would be scared if I were them; knowing how mad we are… and how this has turned into a night mare!! we need answers!
Thank you for all your thoughts and prayers,
Stacey
