Zachary had a pretty good night, lately Zachary’s feet are always cold; so half the night the poor nurses were filling the blanket warmer left and right. I think because he has lost so much weight and now he is playing catch up.

Zachary is still on TPN and the DRS are hoping to maybe  to start his J-feed with Pedialite at 5 cc an hour, I’m not going to hold my breath because every time we try to start his feds He either gets another bowel obstruction or something else these DRS just cant explain. If Zachary is not able to tolerate them this time they will keep him on TPN for a while. I don’t like the long term effects of TPN; it has it own set of problems and one is liver failure.

The DRS are also trying make discussions about what they should do with Zachary’s Pancreatitis. It is so crazy because his labs and the way his stomach and bowels quit working says that he has it, but usually someone with Pancreatitis are in a lot more pain and in ICU sedated. Well Zachary is one tough Kid! The DRS are rechecking his levels again today and are consulting with other DRS. If his Pancreatitis levels keep going up then they will have to maybe do another surgery to put a stent to open it up; not sure every day it is something new.

Zachary is such a little trooper! With all that he has been through ,

Zachary and his Favorite nurses

he will always give me a smile!!

It’s hard when people don’t understand how fragile these children are, so they are surrounded by other kids and adults with fevers (avoid kidney kids if you have a fever) and runny noses and coughs and siblings who have been exposed on a constant basis. Because they look fine, because they play like your child…they are treated as such. However, for these kidney babes, it’s like putting them in the boxing ring with their hands tied behind their backs. With immune suppression, they suppress their body’s natural reaction to fight off foreign germs. The problem is they don’t know what they are suppressing. All of these  kidney kids are all miracles in my eyes!!! Jill  another Kidney Momma of Gavin wrote this, and this is Reality for all of our Kidney kids.

Thank you for all your thoughts and prayers,

Stacey