Zachary had a rough night with pain and being really itchy from the narcotics, I had to rub his poor little tummy and head all night. I feel so bad that he is starting all over from a recovery stand point. Then DRS came in and all they keep saying is your Zach is such a little fighter with all that he has been through.
Zachary will start TPN again for about another week and hopefully get him back on his J-tube feeds, depending on if his stomach will work again properly. Being on TPN is really hard on Zachary’s Transplanted Kidney and now that he is in Kidney Failure again it is even harder on him. Zachary is still having high Blood Pressure again even with him being on 5 Blood Pressure Meds! I am trying to get Cardiologists involved to make sure his heart is handling all this stress.
The plan is in 3 days to do a die study to see if his stomach or esophagus is still leaking if not we will try to give Zachary small sips of water to see what happens. We are having a hard time keeping Zach here at the U of M and are ready to Transfer him to Mayo, the U of M has made too many mistakes. The nurese here are wonderful but the DRS need to communicate alittle better.
Thank you for all your thoughts and prayers, Please keep Lynnea in your prayers she is 4 months old and is on a heart-Lung bybass machine www.callisonchronicle.blogspot.com
Stacey

