We need answers! Zachary had another rough night with no sleep! And now he lost another IV!  The DRS came in and are now mad that they cancelled the Pick Line today, me too!

I was going to explain a little about Zachary’s Nissen ; What is going on is that, The Nissen  is very swollen and irritated nothing can pass, so all the spit and saliva that you make in your mouth that you are suppose to swallow  sits on top of the esophagus and every 2-5mins he will need to throw it up. Not FUN, last night he was crying half the night wanting it to stop!  The DRS still say they won’t loosen it for at least another 4 weeks!! That is way too long with him throwing up 60-100 times a day!!!

The Plan today is to talk to the DRS in releasing Zachary tomorrow to see if he will do better at home in his own environment. Zachary is exhausted beyond exhaustion; he needs to sleep. Physical therapy came today and all he did was cry and his poor legs are so weak, every time he would stand they would shake. Then speech came in and his eye would just roll back into his head. I finally had everybody leave so he could nap and then lab came back! Give this kid a break! He is so exhausted. Zachary is finally asleep, I put a sign on the door that says “DO NOT DISTURB!! We will see if that works.

I hope they will just let me take him home and get a home health nurse to come out daily to check on him and draw labs. There is nothing more they can do for him in here.  We have been in for 21 days in less than a month, way too long.  The DRS and nurses all call Zachary the mystery child, how comforting is that.

Thank you all for your thought and prayers, if we go home tomorrow I will still update daily on Zachary’s progress.

Stacey