Zachary seems to like the hospital this year. On Jan we made our way back to the Uof M for a week visit. Zachary had server diarrhea for about two weeks. So his Doctors thought that it would be best to see what was going on. After they did an x’ray of his tummy they just about fell over. He had a blockage and his colon was the size of his pelvic bones. The extra fluid was going around the blockage causing the diarrhea. So one painful fleet enema he was able to pass it. The Doctors think that part of his colon might be dying off. So they sent him home on two new meds to help keep his Bowels moving . It was camp week at the hospital {Camp Get A wella} Zachary had his Hair cut, Grandma Gina had her nails done. face painting, tie dyed shirts, como zoo brought some animals,puppy dog show,and crafts everyday. The funnest stay ever at the hospital, it was almost hard for us to leave. NOT!! But we did have a lot of fun. Then In March Zachary had surgery to repair the tip of his penis,they also scoped his bladder and urethra, all went well. APRIL Zachary started speech and OT down at the U of M twice a week and also started having problems with his Creatinine levels{kidney function} going high. So labs 3 times a week things did settle down His cretinine settled at 0.9 higher then they like but we will take. MAY came and Zachary was driving his Lighting McQueen car and passed out, we think from a high fever {103.8} so back in the hospital for a three day stay, some labs IV fluids, EEG that showed he is having some sort of tick syndrome going on. Zachary has been blinking his eyes lot for about a year now. He had a ERG on his eyes in Feb. that showed that his retina looks a little thin . Not to concerning just a eye check up with Dr Sommer’s every 6 months.We are all home for now ,with colds so Please pray we are all healthy for Zachary’s {Make A Wish} trip to Disney World on June 25.
Thank you for all your support and prayers
The Elsenpeters

• New Years Day Morning we woke up to Zachary having a fever of 105.2, so we packed our bags and drove to the Hospital. Great way to start off the New year!!!! Well a 3 day stay and lots of test and lab draws. Zachary had some sort of viral infection that really knocked him down. They sent us home Wednesday night we had them leave his IV in his arm. Zachary had a eye surgery we had previously scheduled for the next morning. After settling into our third room we really wouldn’t have minded staying over night to avoid the hassle of packing up and going home only to return at 7:00a.m the next morning. Zachary did very well with his eye surgery. While he was out they did a exam and performed a ERG (Electroretinogram) this is an eye test that evaluates the function of the film (retina). Their intial thought is his retina looks a little thin. We will not have the results back for a couple of weeks. We are all home and well. Hopefully, this year will be a healthy year for all of us. Zachary had a doctors appointment today at the U of M with Dr. Najara, (his kidney specialist) for his 6 month check. She didn’t like that he hadn’t made any significant weight gain. His speech is delayed and he is still being feed through his g-tube. I have tried everything, two years later and still struggling. We meet with a new speech and feeding specialist on Jan 25 hopefully we have progress. However, she was impressed with how he has matured. He was very cooperative and eager to be looked over. Not at all how he acted a year ago.

  The rest of the family is doing great. Wade has an appointment next Friday to have a physical and to check his one good kidney. {Which is long over do, 2yrs}.
  Kiley is doing great in school and gymnastics. Kiley will turn 7 on Jan 25, the day we meet with the speech specialist.
  Austin is getting so big and sharing clothes with Zach. He is walking all over and trying hard to talk.
  Stacey is busy making Doctor appointments, going to doctor appointments , taking kiley to gymnastic and lots of laundry. Just all that fun stuff.

  God bless you all and Happy New year

  Thank you for all your continued thoughts and prayers

  The Elsenpeters