I am so sorry that we have not updated this in a while, a lot has been going on. Zachary’s EBV which detects cancer, jumped from 5,100 to 17,500, this is a very big jump. They did a full body CAT scan on him and found enlarged lymphnodes in his neck, which they are concerned with. He has his EBV drawn monthly along with his weekly labs, so they will still keep a close eye on that.

On Tuesday, May 23rd, he had another surgery called an endoscopy. In this procedure they go in with a scope to see what is going on in the esophagus and the stomach. The doctor said that the esophagus looked pretty bad, so we met with another surgeon today to talk about another surgery called a nissenfundalplacation. This is where they would go in and tie the stomach so no acid can come up to eat away at the esophagus.

Besides all of that – Zach is doing great. He is still not eating by mouth and has his G-feeds during the day and J- feeds at night. We hope after the nissen he starts eating more by mouth. His speech is coming along slowly, he can say mom, dad, no, yes, but everything else is babble. It is very frustrating trying to understand a two year old that is trying to tell you something. We have a speech theraphist who comes out weekly to help him with his speech and sign language.

The rest of the family is doing great, Kiley has only 5 more days left of school, so she is pretty excited about summer. Austin is almost 5 months old and is about 19 pounds!! Big happy boy. Wade is working 4-to midnight so he can make all of Zach’s Doctor appointments. I am doing pretty well, just trying to hold it all together for the family.

-Stacey-

New photos added